Emily Pooler was born seven weeks premature, but it wasn’t until she was three years old that doctors realized the little girl was suffering from a host of life-threatening medical conditions.
Emily was diagnosed with a very rare condition known as Caudal Regression Syndrome and is missing the entire lower part of her spine. In 2014, the Auburn, Maine native also learned she has stage four chronic kidney disease and would need a kidney transplant within 18 months. Three years later, Emil is still looking for a donor.
“She’s proven anything is possible,” her mother, Alison Pooler, told WGME.
No one in Emily’s family is a match, so at the suggestion of her medical team, she and her parents have taken to social media to get the word out about her need.
Our 11 year old daughter, Emily, needs a kidney transplant. Please help us find a living donor. Please share her video. Thank you so much. xxxooo
Posted by Alison Walker Pooler on Friday, June 30, 2017
The 30-second video, in which Emily shares she is looking for a “very healthy” live donor, has been shared nearly 10,000 times and local news agencies in Maine have picked up the story.
Emily has 17 different medical conditions, takes 14 medications, and needs a new kidney.
Emily needs a kidney from someone with either type A or type O blood and anyone interested in learning more is encouraged to contact the Maine Transplant Program.